Reading a comment on one of my science news item about autism, I thought it would be a good idea to compile a list of online sources for autism. For those looking to be educated about this subject, and don’t know where to start hopefully this will be useful link. However, those who are dealing with autism, should seek professional help and use online resources as a way to educate themselves, to find others to share experiences with etc.
If you read this and find a critical resource missing, please leave a comment with the link. I will recompile the list and publish after a while.
Here is a list of starting resources:
- http://www.autism.com/ – From Autism Research Institute not for profit institute dedicated to autism researcha and the belief that autism is curable and the first step is to accept that it’s a medial problem that can be treated by various means.
- http://www.researchautism.org/ – this site is a lot more about educating parents and families about autism, applying the research in a practical way. Lots of good material on what is autism, how to diagnose it, support and treatment options etc.
- National Autism Association is a very good source for links, help and other information on autism.
- http://www.aspergersyndrome.org/ OASIS site and help for families
- Autism Society web site is another great resource for families. Especially check this page on treatment options http://www.autism-society.org/site/PageServer?pagename=life_treat
- http://www.autism-pdd.net/ not as well organized but has some useful informational help on autism.
- Useful links in John Wobus’ page on autism
- Autism speaks is another source for families
- Did wrong diet make this woman autistic? A very inspiring story of a woman and author who was and is autistic but managed to find happiness through dietary adjustments.
Research related links:
- http://www.nichd.nih.gov/autism/ NIH contains very good resources for professionals for autism research. In particular NIH just announced a database targeting researchers on autism. See link below.
The NIH has developed the National Database for Autism Research (NDAR) as a secure bioinformatics platform for scientific collaboration around autism spectrum disorder (ASD). Its objectives are to:
- Facilitate data sharing and scientific collaboration;
- Provide bioinformatics solutions to address community-wide needs; and
- Enable the effective communication of detailed research data, tools, and information.
NDAR is a robust resource designed to help the ASD research community to accelerate discoveries that will improve the lives of people with autism and their families.
CDC on Autism http://www.cdc.gov/ncbddd/autism/index.html
CDC also has good resources. Specifically a program they have called SEED (stands for Study to explore early development) focuses on identifying what might put childrens at risk for autism sprectrum disorders (ASD)